Difference between revisions of "Amy Sequenzia"

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'''Amy Sequenzia''' is an American non-verbal autistic prominent in the field of [[Autism spectrum|autism]] and [[disability]] activism. She is known for voluminous writings that are produced through [[facilitated communication]] and published under her name.<ref name="Bakan">{{cite book|url=https://books.google.com/books?id=gnpVDwAAQBAJ&pg=FA201|title=Speaking for Ourselves: Conversations on Life, Music, and Autism|last1=Bakan|first1=Michael B.|last7=Peterson|first7=Gordon|date=2018|publisher=Oxford University Press|year=|isbn=9780190855833|location=|pages=201–216|language=en|authorlink1=Michael Bakan|url-access=subscription|via=Oxford Scholarship}}</ref>  
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'''Amy Sequenzia''' is an American non-verbal autistic prominent in the field of [[Autism spectrum|autism]] and [[disability]] activism. She is primarily known for her voluminous writings, produced through [[facilitated communication|facilitated communication.]]<ref name="Bakan">{{cite book|url=https://books.google.com/books?id=gnpVDwAAQBAJ&pg=FA201|title=Speaking for Ourselves: Conversations on Life, Music, and Autism|last1=Bakan|first1=Michael B.|last7=Peterson|first7=Gordon|date=2018|publisher=Oxford University Press|year=|isbn=9780190855833|location=|pages=201–216|language=en|authorlink1=Michael Bakan|url-access=subscription|via=Oxford Scholarship}}</ref>
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Scholarly consensus deems facilitated communication to be pseudoscience and that the facilitator himself, is the source of messages obtained through the process.
  
 
== Biography ==
 
== Biography ==
 
Sequenzia was born in [[Miami]] and grew up in a community group home in [[St. Louis]] where there was a better [[special education]] program.{{Sfn|Bakan|2018|p=205}} Sequenzia moved back to [[Florida]] in 2005.<ref name=":0">{{Cite news|url=https://www.newspapers.com/clip/33007543/|title=CATA Poets Speak Their Minds Tonight|last=Corona|first=Laura|date=July 29, 2010|work=North Adams Transcript|access-date=June 18, 2019|via=Newspapers.com}}</ref> She has [[cerebral palsy]],<ref>{{cite magazine|url=https://slate.com/culture/2016/10/why-abc-s-speechless-feels-like-such-a-revolutionary-depiction-of-disabled-people.html|title=Why ABC's Speechless feels like such a revolutionary depiction of disabled people|work=Slate|date=October 19, 2016|accessdate=June 19, 2019}}</ref> and is a member of the [[Autistic Self Advocacy Network|Autistic Self-Advocacy Network]].<ref>{{Cite book|url=https://books.google.com/books?id=KdtdDwAAQBAJ&lpg=PT238&dq=%22amy%20sequenzia%22&pg=PT238#v=onepage&q=%22amy%20sequenzia%22&f=false|title=Communication, Gaze and Autism: A Multimodal Interaction Perspective|last=Korkiakangas|first=Terhi|date=May 30, 2018|publisher=Routledge|isbn=9781317221258|language=en}}</ref> Writings and other commentary attributed to Sequenzia include poetry,<ref name=":0" /> contributions to the book ''Loud Hands'',{{Sfn|Bakan|2018|p=203}} and a speech to the [[Florida Legislature]] on issues relating to health and [[Disability|people with disabilities]].<ref>{{Cite news|url=https://www.newspapers.com/clip/33007760/|title=Range of Issues Discussed|last=Berman|first=Dave|date=December 13, 2012|work=Florida Today|access-date=June 18, 2019|via=Newspapers.com}}</ref> In speaking panels, she uses a special [[iPad]] that "speaks" for her based on input typed by a facilitator.{{Sfn|Bakan|2018|p=216}}
 
Sequenzia was born in [[Miami]] and grew up in a community group home in [[St. Louis]] where there was a better [[special education]] program.{{Sfn|Bakan|2018|p=205}} Sequenzia moved back to [[Florida]] in 2005.<ref name=":0">{{Cite news|url=https://www.newspapers.com/clip/33007543/|title=CATA Poets Speak Their Minds Tonight|last=Corona|first=Laura|date=July 29, 2010|work=North Adams Transcript|access-date=June 18, 2019|via=Newspapers.com}}</ref> She has [[cerebral palsy]],<ref>{{cite magazine|url=https://slate.com/culture/2016/10/why-abc-s-speechless-feels-like-such-a-revolutionary-depiction-of-disabled-people.html|title=Why ABC's Speechless feels like such a revolutionary depiction of disabled people|work=Slate|date=October 19, 2016|accessdate=June 19, 2019}}</ref> and is a member of the [[Autistic Self Advocacy Network|Autistic Self-Advocacy Network]].<ref>{{Cite book|url=https://books.google.com/books?id=KdtdDwAAQBAJ&lpg=PT238&dq=%22amy%20sequenzia%22&pg=PT238#v=onepage&q=%22amy%20sequenzia%22&f=false|title=Communication, Gaze and Autism: A Multimodal Interaction Perspective|last=Korkiakangas|first=Terhi|date=May 30, 2018|publisher=Routledge|isbn=9781317221258|language=en}}</ref> Writings and other commentary attributed to Sequenzia include poetry,<ref name=":0" /> contributions to the book ''Loud Hands'',{{Sfn|Bakan|2018|p=203}} and a speech to the [[Florida Legislature]] on issues relating to health and [[Disability|people with disabilities]].<ref>{{Cite news|url=https://www.newspapers.com/clip/33007760/|title=Range of Issues Discussed|last=Berman|first=Dave|date=December 13, 2012|work=Florida Today|access-date=June 18, 2019|via=Newspapers.com}}</ref> In speaking panels, she uses a special [[iPad]] that "speaks" for her based on input typed by a facilitator.{{Sfn|Bakan|2018|p=216}}
  
According to her facilitated communications, she self-identifies as a "non-speaking Autistic", preferring to use the capital letter as a mark of pride "because it is my identity and cannot be separated from me", and says she is "not ashamed" of her condition.<ref>{{cite news|url=https://www.theguardian.com/society/2015/mar/20/autism-does-aba-therapy-open-societys-doors-to-children-or-impose-conformity|title=Autism: does ABA therapy open society's doors to children, or impose conformity?|first=Sydney|last=Parker|newspaper=The Guardian|date=March 20, 2015|accessdate=June 19, 2019}}</ref> Additional statements have included telling parents not to try and "fix" their children, but to celebrate and endorse who they are so they will be "safe to live disabled",<ref>{{cite news|url=https://www.latimes.com/opinion/op-ed/la-oe-perry-picciuto-disability-rights-abortion-zika-20160829-snap-story.html|title=Disability rights and reproductive rights don't have to be in conflict|work=LA Times|date=August 29, 2016|accessdate=June 19, 2019}}</ref><ref>{{cite magazine|url=https://theweek.com/articles/807005/child-not-prop|title=Your child is not a prop|work=The Week|date=December 29, 2018|accessdate=June 19, 2019}}</ref> and criticizing [[Temple Grandin]] for only focusing on and listening to high-functioning autistics.<ref>{{cite news|url=https://blog.sfgate.com/lshumaker/2012/08/12/15-things-you-should-never-say-to-an-autistic-by-lydia-brown/|title=Things You Should Never Say to An Autistic|work=San Francisco Chronicle|date=August 12, 2012|accessdate=June 19, 2019}}</ref>
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According to a facilitator, she identifies as a "non-speaking Autistic", preferring to use the capital letter as a mark of pride. A facilitator said that she is not ashamed of her condition.<ref>{{cite news|url=https://www.theguardian.com/society/2015/mar/20/autism-does-aba-therapy-open-societys-doors-to-children-or-impose-conformity|title=Autism: does ABA therapy open society's doors to children, or impose conformity?|first=Sydney|last=Parker|newspaper=The Guardian|date=March 20, 2015|accessdate=June 19, 2019}}</ref> Additional statements made by her facilitator have included telling parents not to try and "fix" their children, but to celebrate and endorse who they are so they will be safe to live disabled,<ref>{{cite news|url=https://www.latimes.com/opinion/op-ed/la-oe-perry-picciuto-disability-rights-abortion-zika-20160829-snap-story.html|title=Disability rights and reproductive rights don't have to be in conflict|work=LA Times|date=August 29, 2016|accessdate=June 19, 2019}}</ref><ref>{{cite magazine|url=https://theweek.com/articles/807005/child-not-prop|title=Your child is not a prop|work=The Week|date=December 29, 2018|accessdate=June 19, 2019}}</ref> and criticizing [[Temple Grandin]] for only focusing on and listening to high-functioning autistics.<ref>{{cite news|url=https://blog.sfgate.com/lshumaker/2012/08/12/15-things-you-should-never-say-to-an-autistic-by-lydia-brown/|title=Things You Should Never Say to An Autistic|work=San Francisco Chronicle|date=August 12, 2012|accessdate=June 19, 2019}}</ref>
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== Criticism of facilitated communication ==
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[[Facilitated communication]] is a scientifically discredited technique<ref name="Autism Wars">{{cite web|url=https://www.csicop.org/specialarticles/show/autism_wars_science_strikes_back|title=Autism Wars: Science Strikes Back|last1=Vyse|first1=Stuart|date=7 August 2018|website=Skeptical Inquirer Online|publisher=Skeptical Inquirer|accessdate=28 November 2018}}</ref><ref>{{Cite journal|last=Jacobson|first=John W.|last2=Mulick|first2=James A.|last3=Schwartz|first3=Allen A.|date=1995|title=A history of facilitated communication: Science, pseudoscience, and antiscience science working group on facilitated communication.|url=https://doi.org/10.1037/0003-066x.50.9.750|journal=American Psychologist|language=en|volume=50|issue=9|pages=750–765|doi=10.1037/0003-066x.50.9.750|issn=0003-066X}}</ref><ref name="Boodman, Sandra (1995)">{{cite news|url=https://www.washingtonpost.com/archive/lifestyle/wellness/1995/01/17/can-autistic-children-be-reached-through-facilitated-communication-scientists-say-no/0f703028-81ac-4d4a-877e-daf6f98cd0fc/|title=Can autistic children be reached through 'Facilitated Communication'? Scientists say no|last1=Boodman|first1=Sandra G.|date=January 17, 1995|work=The Washington Post|accessdate=March 18, 2015|issue=Final Edition|location=Washington, D.C.|page=z01}}</ref> and there exists widespread agreement within the scientific community and multiple disability advocacy organizations that FC is not a valid technique for communicating with those having autism spectrum disorder.<ref name="Riggott, Julie">{{cite journal|last1=Riggott|first1=Julie|date=Spring–Summer 2005|title=Pseudoscience in Autism Treatment: Are the News and Entertainment Media Helping or Hurting?|journal=Scientific Review of Mental Health Practice|volume=4|issue=1|pages=58–60|accessdate=}}</ref><ref>{{Cite journal|date=2014-12-01|title=ISAAC Position Statement on Facilitated Communication|url=https://doi.org/10.3109/07434618.2014.971492|journal=Augmentative and Alternative Communication|volume=30|issue=4|pages=357–358|doi=10.3109/07434618.2014.971492|issn=0743-4618}}</ref><ref name="Wichert">{{cite web|url=http://www.nj.com/essex/index.ssf/2015/10/professor_found_guilty_of_sexually_assaulting_disa.html|title=Professor found guilty of sexually assaulting disabled man|last1=Wichert|first1=Bill|website=NJ.com|accessdate=4 October 2015}}</ref><ref name=":1">{{Cite journal|last=Schlosser|first=Ralf W.|last2=Balandin|first2=Susan|last3=Hemsley|first3=Bronwyn|last4=Iacono|first4=Teresa|last5=Probst|first5=Paul|last6=Tetzchner|first6=Stephen von|date=2014-12-01|title=Facilitated Communication and Authorship: A Systematic Review|url=https://doi.org/10.3109/07434618.2014.971490|journal=Augmentative and Alternative Communication|volume=30|issue=4|pages=359–368|doi=10.3109/07434618.2014.971490|issn=0743-4618}}</ref> Research indicates that the facilitator himself, is the source of messages obtained through the process.<ref name="Why debunked autism treatment fads persist">{{cite web|url=https://www.sciencedaily.com/releases/2015/02/150226154644.htm|title=Why debunked autism treatment fads persist|last1=Lilienfeld|date=26 February 2015|website=Science Daily|publisher=Emory University|accessdate=10 November 2015|display-authors=etal}}</ref><ref name="Ganz/Katsiyannis/Morin">{{cite journal|last1=Ganz|first1=Jennifer B.|last2=Katsiyannis|first2=Antonis|last3=Morin|first3=Kristi L.|date=February 2017|title=Facilitated Communication: The Resurgence of a Disproven Treatment for Individuals With Autism|journal=Intervention in School and Clinic|volume=54|pages=52–56|doi=10.1177/1053451217692564}}</ref><ref>{{Cite journal|last=Mostert|first=Mark P.|date=2010-01-19|title=Facilitated Communication and Its Legitimacy—Twenty-First Century Developments|url=https://doi.org/10.1080/09362830903462524|journal=Exceptionality|volume=18|issue=1|pages=31–41|doi=10.1080/09362830903462524|issn=0936-2835}}</ref><ref name="Review 2018">{{cite journal|last1=Hemsley|first1=Bronwyn|last2=Bryant|first2=Lucy|last3=Schlosser|first3=Ralf|last4=Shane|first4=Howard|last5=Lang|first5=Russell|last6=Paul|first6=Diane|last7=Benajee|first7=Meher|last8=Ireland|first8=Marie|date=2018|title=Systematic review of facilitated communication 2014-2018 finds no new evidence that messages delivered using facilitated communication are authored by the person with the disability|url=https://journals.sagepub.com/doi/10.1177/2396941518821570|journal=Autism and Developmental Language Impairments|volume=3|pages=1-8|doi=10.1177/2396941518821570|accessdate=22 May 2019}}</ref><ref name=":1" />
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According to skeptic [[Steven Novella]], a professor at [[Yale University School of Medicine]], Sequenzia's writings under FC are unusually eloquent for a nonverbal autistic individual. He additionally stated that there is no given explanation for how she spontaneously learned to read and write at an advanced level when she was eight years old.<ref>{{Cite web|url=https://theness.com/neurologicablog/index.php/facilitated-communication-persists-despite-scientific-criticism/|title=Facilitated Communication Persists Despite Scientific Criticism|date=2012-11-08|website=NeuroLogica Blog|access-date=2019-06-20}}</ref>
  
 
==References==
 
==References==
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[[Category:People with insomnia]]
 
[[Category:People with insomnia]]
 
[[Category:Year of birth missing (living people)]]
 
[[Category:Year of birth missing (living people)]]
[[Category:21st-century American women writers]]
 
[[Category:American women poets]]
 
[[Category:21st-century American poets]]
 
[[Category:American women activists]]
 
[[Category:Autism activists]]
 
[[Category:Disability rights activists from the United States]]
 

Revision as of 05:35, 21 June 2019


This article was considered for deletion at Wikipedia on June 16 2019. This is a backup of Wikipedia:Amy_Sequenzia. All of its AfDs can be found at Wikipedia:Special:PrefixIndex/Wikipedia:Articles_for_deletion/Amy_Sequenzia, the first at Wikipedia:Wikipedia:Articles_for_deletion/Amy_Sequenzia. Purge

Template:Use mdy dates Amy Sequenzia is an American non-verbal autistic prominent in the field of autism and disability activism. She is primarily known for her voluminous writings, produced through facilitated communication.[1]

Scholarly consensus deems facilitated communication to be pseudoscience and that the facilitator himself, is the source of messages obtained through the process.

Biography

Sequenzia was born in Miami and grew up in a community group home in St. Louis where there was a better special education program.Template:Sfn Sequenzia moved back to Florida in 2005.[2] She has cerebral palsy,[3] and is a member of the Autistic Self-Advocacy Network.[4] Writings and other commentary attributed to Sequenzia include poetry,[2] contributions to the book Loud Hands,Template:Sfn and a speech to the Florida Legislature on issues relating to health and people with disabilities.[5] In speaking panels, she uses a special iPad that "speaks" for her based on input typed by a facilitator.Template:Sfn

According to a facilitator, she identifies as a "non-speaking Autistic", preferring to use the capital letter as a mark of pride. A facilitator said that she is not ashamed of her condition.[6] Additional statements made by her facilitator have included telling parents not to try and "fix" their children, but to celebrate and endorse who they are so they will be safe to live disabled,[7][8] and criticizing Temple Grandin for only focusing on and listening to high-functioning autistics.[9]

Criticism of facilitated communication

Facilitated communication is a scientifically discredited technique[10][11][12] and there exists widespread agreement within the scientific community and multiple disability advocacy organizations that FC is not a valid technique for communicating with those having autism spectrum disorder.[13][14][15][16] Research indicates that the facilitator himself, is the source of messages obtained through the process.[17][18][19][20][16]

According to skeptic Steven Novella, a professor at Yale University School of Medicine, Sequenzia's writings under FC are unusually eloquent for a nonverbal autistic individual. He additionally stated that there is no given explanation for how she spontaneously learned to read and write at an advanced level when she was eight years old.[21]

References

  1. Bakan, Michael B. (2018) (in en). Speaking for Ourselves: Conversations on Life, Music, and Autism. Oxford University Press. pp. 201–216. ISBN 9780190855833. https://books.google.com/books?id=gnpVDwAAQBAJ&pg=FA201. 
  2. 2.0 2.1 Corona, Laura (July 29, 2010). "CATA Poets Speak Their Minds Tonight". North Adams Transcript. https://www.newspapers.com/clip/33007543/. 
  3. Template:Cite magazine
  4. Korkiakangas, Terhi (May 30, 2018) (in en). Communication, Gaze and Autism: A Multimodal Interaction Perspective. Routledge. ISBN 9781317221258. https://books.google.com/books?id=KdtdDwAAQBAJ&lpg=PT238&dq=%22amy%20sequenzia%22&pg=PT238#v=onepage&q=%22amy%20sequenzia%22&f=false. 
  5. Berman, Dave (December 13, 2012). "Range of Issues Discussed". Florida Today. https://www.newspapers.com/clip/33007760/. 
  6. Parker, Sydney (March 20, 2015). "Autism: does ABA therapy open society's doors to children, or impose conformity?". The Guardian. https://www.theguardian.com/society/2015/mar/20/autism-does-aba-therapy-open-societys-doors-to-children-or-impose-conformity. Retrieved June 19, 2019. 
  7. "Disability rights and reproductive rights don't have to be in conflict". LA Times. August 29, 2016. https://www.latimes.com/opinion/op-ed/la-oe-perry-picciuto-disability-rights-abortion-zika-20160829-snap-story.html. Retrieved June 19, 2019. 
  8. Template:Cite magazine
  9. "Things You Should Never Say to An Autistic". San Francisco Chronicle. August 12, 2012. https://blog.sfgate.com/lshumaker/2012/08/12/15-things-you-should-never-say-to-an-autistic-by-lydia-brown/. Retrieved June 19, 2019. 
  10. Vyse, Stuart (7 August 2018). "Autism Wars: Science Strikes Back". Skeptical Inquirer. https://www.csicop.org/specialarticles/show/autism_wars_science_strikes_back. Retrieved 28 November 2018. 
  11. Jacobson, John W.; Mulick, James A.; Schwartz, Allen A. (1995). "A history of facilitated communication: Science, pseudoscience, and antiscience science working group on facilitated communication." (in en). American Psychologist 50 (9): 750–765. Template:Citation error. ISSN 0003-066X. https://doi.org/10.1037/0003-066x.50.9.750. 
  12. Boodman, Sandra G. (January 17, 1995). "Can autistic children be reached through 'Facilitated Communication'? Scientists say no". The Washington Post (Washington, D.C.) (Final Edition): p. z01. https://www.washingtonpost.com/archive/lifestyle/wellness/1995/01/17/can-autistic-children-be-reached-through-facilitated-communication-scientists-say-no/0f703028-81ac-4d4a-877e-daf6f98cd0fc/. Retrieved March 18, 2015. 
  13. Riggott, Julie (Spring–Summer 2005). "Pseudoscience in Autism Treatment: Are the News and Entertainment Media Helping or Hurting?". Scientific Review of Mental Health Practice 4 (1): 58–60. 
  14. "ISAAC Position Statement on Facilitated Communication". Augmentative and Alternative Communication 30 (4): 357–358. 2014-12-01. Template:Citation error. ISSN 0743-4618. https://doi.org/10.3109/07434618.2014.971492. 
  15. Wichert, Bill. "Professor found guilty of sexually assaulting disabled man". http://www.nj.com/essex/index.ssf/2015/10/professor_found_guilty_of_sexually_assaulting_disa.html. Retrieved 4 October 2015. 
  16. 16.0 16.1 Schlosser, Ralf W.; Balandin, Susan; Hemsley, Bronwyn; Iacono, Teresa; Probst, Paul; Tetzchner, Stephen von (2014-12-01). "Facilitated Communication and Authorship: A Systematic Review". Augmentative and Alternative Communication 30 (4): 359–368. Template:Citation error. ISSN 0743-4618. https://doi.org/10.3109/07434618.2014.971490. 
  17. Lilienfeld (26 February 2015). "Why debunked autism treatment fads persist". Emory University. https://www.sciencedaily.com/releases/2015/02/150226154644.htm. Retrieved 10 November 2015. 
  18. Ganz, Jennifer B.; Katsiyannis, Antonis; Morin, Kristi L. (February 2017). "Facilitated Communication: The Resurgence of a Disproven Treatment for Individuals With Autism". Intervention in School and Clinic 54: 52–56. Template:Citation error. 
  19. Mostert, Mark P. (2010-01-19). "Facilitated Communication and Its Legitimacy—Twenty-First Century Developments". Exceptionality 18 (1): 31–41. Template:Citation error. ISSN 0936-2835. https://doi.org/10.1080/09362830903462524. 
  20. Hemsley, Bronwyn; Bryant, Lucy; Schlosser, Ralf; Shane, Howard; Lang, Russell; Paul, Diane; Benajee, Meher; Ireland, Marie (2018). "Systematic review of facilitated communication 2014-2018 finds no new evidence that messages delivered using facilitated communication are authored by the person with the disability". Autism and Developmental Language Impairments 3: 1-8. Template:Citation error. https://journals.sagepub.com/doi/10.1177/2396941518821570. Retrieved 22 May 2019. 
  21. "Facilitated Communication Persists Despite Scientific Criticism". 2012-11-08. https://theness.com/neurologicablog/index.php/facilitated-communication-persists-despite-scientific-criticism/. 

Sources

Template:Authority control


External link

  • Blog at Ollibean.com